I have never really stressed about Annebelle’s focal epilepsy, she hasn’t had a focal seizure since she was a newborn and honestly with the exception of the medication that she needs everyday we’ve been pretty lucky on the focal epilepsy front. (Annebelle battled Infantile spasms as an infant but that was a whole different beast- it had different symptoms, dangers and treatments.) We experienced a terrifying week in the beginning of Annebelle’s life where she was having seizures everyday, multiple times a day, but her body responded amazingly well to her medication and the seizures stayed at bay for two and a half years. I was a naively optimistic mom during that time, I knew that there was a high chance that her focal epilepsy would never go away based on her MRI and brain damage, but I was confident that her medications would continue to work and keep her seizure free- they had for so long there was no reason for me to think they’d stop.
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My name is Katie and this is my mini me Annie, follow our cerebral palsy adventure.
#Normalizedisabilities #inclusionisthenewcool Archives
August 2018
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